Sorry I haven't got back in posting, but things have been a little busy! While I looked over the notes I took with me that day, my audiologist asked how I liked three programson the left ear.I told her that I did the replacement test and found out that program 2 on the left ear give me a score of 88% alone, and in the right ear I was giving score of 91% alone and with both ears. It was only given me an 82%, and she said that the higher frequencies on my left ear need to be turned to more and she turned them up.... and WOW.... what a big difference. She tell me that the programs on my left ear was scoring at 88% was Hi Res P. fidelity 120 and she said all three programs to the Hi Res P. fidelity 120. The first program is for noisy places, such as a room with the TV going with people talking in the background or restaurants. Program two was for everyday listening and program three is for everyday listening just a little bit louder.
Then we did the right here and said I was doing really well on that here and that he will probably be the leading ear. She asked me what programs I would like on that one ear, and told her that I like program three. I told her that I figured out that I her bare with program two on the left ear and program trading on the right here she told me she did not tell me what programs were on the right ear and for me to try them out for one month. She said so you like the right here on to the Hi Res S fidelity 120 and said that she was going to program the right ear to the Hi Res S fidelity 120. So the programs for the right ear is program one is for noisy places program two is for everyday listening in the program three is for telephone for home and cell.
The boys were with me that day I had to take them to the doctor. I could understand their doctor and he was really happy that I could here and I could understand him and he didn't have to repeat each thing that he was saying. He also told me that there was c a young couple with their little baby is seven months old and is probably going for the cochlear implants I told him about hearing journey.com and that there were lots of parents of children with cochlear implants. And that they could get a lot of information and support that they need and that the members would be very happy to answer questions that they may have and concerns about the cochlear implant. As I was walking I could hear noises and I didn't know what exactly it was it was thinking it might have been the boys video games making the noise. We went on and I got out of the car and started walking I heard it again. I only heard it when I was walking then I realized it was claimed in my pocket that was making the sound and that I could also hear digger's tag on her collar jingling. I'll so now know what the mouse on the computer makes a noise but since the mapping is really really loud clicking noise and high in no now why when I'm on the computer and John is trying to sleep that clicking noise in keeping him up in the computer was in the other room. I'm hearing a lot of new sounds that I've never heard, and it's amazing what a little bit of tweaking can do to your hear better and it's is awesome. I do not have to go back to the audiologist until I know the difference in my hearing. She asked me to do the replacement test to see what my score is. When I got home I got all my listening room Clix advanced listening practice with both ears and I took the test and I got a score of 93% you talk about someone being excited I was so excited that I was jumping up and down and squealing in the delight. I never have gotten that high on a score. And I was like the people on. hearing journey-it gets better and better. I will keep you posted is on some of wow moments in my progress.
Wednesday, July 7, 2010
Tuesday, February 9, 2010
My First Bilateral Mapping
February 4,2010 I went to get my first bilateral mapping.... Well here is what happen that day! I got there at 10 am CST and John could not go with me and that was OK! I understand with the type of job he has! While I was waiting to be called back, there was a new CI patient I was talking with. He asked me how I was doing with CI and I told him that I was there for a tune up and he and his wife laughed. There was one other person asking about the Chochlear implant and I told him how it works.
The new CI patient was telling me that Donna told him to go to hearingjourney.com to the listening room and that he can work on the clix to improve his hearing. He said that it look like something a kid would use. I told him that your brain is like a newborn baby and it is relearning and you have to work hard at it and if you do not work at it you will not get better. As I was talking, Donna came out and asked if we are having a party and that she would join us and we all laughed and said yes. She asked what we were talking about and I told her that I was telling the new CI patient that he needs to work hard to retraining the brain to hear better; that it is not a quick fix and that it take time and a lot hard work. Donna said you have heard it from someone that knows and that she had been there and that she had her first implant for one year today!!
Donna called me to the back and she ask how things were going for me. I told her that I hear better with Hi Res 120 then the regular program. I just could not understand speech at all without the 120. So she put me on the P Hi Res 120 on all 3 slots. We talked and she was telling me that I was talking to her without looking at her to read lips and the (left)processor was not in at all. It as awesome and we were getting excited that I was doing so well.
She was concerned about changing the radio frequencies and that the (right)might not stay locked. Well we tried it to see what would happen and it stayed on with no problem. She thinks that I was swollen where the magnet was. During this time we had the(left)processor on and each time she turned on the (right)ear the (left) would have a static sound. It finally stayed static long enough so we could try figure out what was going on. When we put on the body processor it stopped. The problem was the processor itself. Donna called AB to tell them that the processor they sent is bad. And what was next. Will there's more. She said that the number on the processor did not match the number on the box at all. Then Donna kept looking at the (left) ear and ask if my ears hurt at all and I told her that the right did I figured it was from the surgery.
She had me go to see Dr.Schwaber (her husband) to see if everything was okay. They looked in my ears and he said that Donna was worried about the left ear and come to find out that the right had a small infection in it but, not to bad of one. His nurse told him that she was trying to get the wax out of my ear and that she seen dry skin flips in my ear. she was trying to get them out and he told her do not do that they will come out on their own. He gave me ear drops to put in my ears and told to put them in twice a day for four days. He said I should come back to get my new processor from Donna on Monday Feb 8Th at 3 p.m. and that we will try to do a mapping. Donna and Dr.Schwaber were shocked on how will I was doing with the right ear alone.
On the way home I was listening to music and I could understand the words to the song and it blew me away. I was shocked I could hear that with the right ear alone and I was not to wear the left processor until Monday. Then I got stuck behind a really bad weark. I could hear all the fire trucks, police cars, ambulance coming behind me.Iam thankful that I cound hear them because it was a two lane road. I had to call John so he would not worry and I could hear him on the phone and it was just the second week since activation. When I got home John called on the home phone and I could hear and understand him.
I am so even though not everything has worked. I can hear with the one ear for now and I'm happy to say that as long as I can hear that I'm truly blessed. So that what happen that day!!!
The new CI patient was telling me that Donna told him to go to hearingjourney.com to the listening room and that he can work on the clix to improve his hearing. He said that it look like something a kid would use. I told him that your brain is like a newborn baby and it is relearning and you have to work hard at it and if you do not work at it you will not get better. As I was talking, Donna came out and asked if we are having a party and that she would join us and we all laughed and said yes. She asked what we were talking about and I told her that I was telling the new CI patient that he needs to work hard to retraining the brain to hear better; that it is not a quick fix and that it take time and a lot hard work. Donna said you have heard it from someone that knows and that she had been there and that she had her first implant for one year today!!
Donna called me to the back and she ask how things were going for me. I told her that I hear better with Hi Res 120 then the regular program. I just could not understand speech at all without the 120. So she put me on the P Hi Res 120 on all 3 slots. We talked and she was telling me that I was talking to her without looking at her to read lips and the (left)processor was not in at all. It as awesome and we were getting excited that I was doing so well.
She was concerned about changing the radio frequencies and that the (right)might not stay locked. Well we tried it to see what would happen and it stayed on with no problem. She thinks that I was swollen where the magnet was. During this time we had the(left)processor on and each time she turned on the (right)ear the (left) would have a static sound. It finally stayed static long enough so we could try figure out what was going on. When we put on the body processor it stopped. The problem was the processor itself. Donna called AB to tell them that the processor they sent is bad. And what was next. Will there's more. She said that the number on the processor did not match the number on the box at all. Then Donna kept looking at the (left) ear and ask if my ears hurt at all and I told her that the right did I figured it was from the surgery.
She had me go to see Dr.Schwaber (her husband) to see if everything was okay. They looked in my ears and he said that Donna was worried about the left ear and come to find out that the right had a small infection in it but, not to bad of one. His nurse told him that she was trying to get the wax out of my ear and that she seen dry skin flips in my ear. she was trying to get them out and he told her do not do that they will come out on their own. He gave me ear drops to put in my ears and told to put them in twice a day for four days. He said I should come back to get my new processor from Donna on Monday Feb 8Th at 3 p.m. and that we will try to do a mapping. Donna and Dr.Schwaber were shocked on how will I was doing with the right ear alone.
On the way home I was listening to music and I could understand the words to the song and it blew me away. I was shocked I could hear that with the right ear alone and I was not to wear the left processor until Monday. Then I got stuck behind a really bad weark. I could hear all the fire trucks, police cars, ambulance coming behind me.Iam thankful that I cound hear them because it was a two lane road. I had to call John so he would not worry and I could hear him on the phone and it was just the second week since activation. When I got home John called on the home phone and I could hear and understand him.
I am so even though not everything has worked. I can hear with the one ear for now and I'm happy to say that as long as I can hear that I'm truly blessed. So that what happen that day!!!
Wednesday, February 3, 2010
Unexpected Appiontment
On Friday January 22, I got up to get John off to work. We were setting at the Kitchen table having a wonderful conversation and laughing and we were both so happy that I could hear so well and things were going pretty good. Later I took James and Jeremy to school and I was hearing very well.
While I was paying for James's lunch in the cafeteria I was talking to the cafeteria manager about the implant and how it works. She said that she had a grandson that has a hard time hearing.I told her how to get in touch with hearing journey.com and Advanced Bionics and to set up an appointment to see if her grandson qualifies for the chochlear implant. Then all of a sudden my right ear a sound and then it was not connecting. The sound was like a sonar ping in a submarine indicating a target. I called Dr.Donna Schwaber and told her what was happening.She ask if I tried changing the magnet and I told her yes, that I even tried the battery and the t-mic and I could not get the environmental sound in the room. I could only hear that one sound. She said that the processor was not working and that she would call Advanced Bionics and see if they can send me a new processor overnight and I told her thank you very much.
The next day the new processor came and I changed the processors out and the new processor was making the same sound and I was getting really worried it might be something serious. I called Dr Schwaber at her home and she told me to come in on Monday January 25 at 2 p.m. and we can see what going on.
That Monday I went in and they called me to the back and Donna hooked me up to the computer. The first thing she noticed was that the processor was cutting itself off and she told me to relax. It was the lock and that the two magnets were not locking. She tried a new setting to see if they would lock and they would still not lock. She said that she had to change the radio frequencies in order to get it to lock. After that , my left ear started having a static sound. I called her back and told her what was going on, She said for me to call Advanced Bionics and talk to them. So I called them and they believed it was that two magnets on my left ear were bad and they sent me two new ones. Well, it wasn't the magnets. I called Danna back, and she said that she thinks she can fix it. That it could be something she can fix and it may be the radio frequency that she changed on the right ear that might be causing it. So I go tomorrow to get everything right. Thanks to my family,Audiologist(Donna), friends from hearing journey and face book for their support.
While I was paying for James's lunch in the cafeteria I was talking to the cafeteria manager about the implant and how it works. She said that she had a grandson that has a hard time hearing.I told her how to get in touch with hearing journey.com and Advanced Bionics and to set up an appointment to see if her grandson qualifies for the chochlear implant. Then all of a sudden my right ear a sound and then it was not connecting. The sound was like a sonar ping in a submarine indicating a target. I called Dr.Donna Schwaber and told her what was happening.She ask if I tried changing the magnet and I told her yes, that I even tried the battery and the t-mic and I could not get the environmental sound in the room. I could only hear that one sound. She said that the processor was not working and that she would call Advanced Bionics and see if they can send me a new processor overnight and I told her thank you very much.
The next day the new processor came and I changed the processors out and the new processor was making the same sound and I was getting really worried it might be something serious. I called Dr Schwaber at her home and she told me to come in on Monday January 25 at 2 p.m. and we can see what going on.
That Monday I went in and they called me to the back and Donna hooked me up to the computer. The first thing she noticed was that the processor was cutting itself off and she told me to relax. It was the lock and that the two magnets were not locking. She tried a new setting to see if they would lock and they would still not lock. She said that she had to change the radio frequencies in order to get it to lock. After that , my left ear started having a static sound. I called her back and told her what was going on, She said for me to call Advanced Bionics and talk to them. So I called them and they believed it was that two magnets on my left ear were bad and they sent me two new ones. Well, it wasn't the magnets. I called Danna back, and she said that she thinks she can fix it. That it could be something she can fix and it may be the radio frequency that she changed on the right ear that might be causing it. So I go tomorrow to get everything right. Thanks to my family,Audiologist(Donna), friends from hearing journey and face book for their support.
Bilateral Activation
Me with my new processor on and to show you a new trick thatDonna show me.
Dr.Donna Schwaber head Audiologist and me with her Husband Dr.Mitchell K.Schwaber M.D. This is the husband and wife CI team that is so good to me.
Two weeks ago on January 21 I had my activation day. John was with that day and in no time they called us back. She asked me how I was doing and if I was ready for the big day! I told her that I was very excited and that I was keeping my expectation low and she said that's a good idea.
She told me that things would sound robotic again, and to be patient and it might go away in a few day or weeks. John asked her if it's almost like a radio transmitting frequencies and she said no. Nothing like that and she explained to him how it works.
She hooked me up to the computer and told me to take the left Chochlear Implant off and told me to be quiet and still while she tested the electrodes. As she was testing them, I could hear the electrode fire up and she turn the computer to where I could see how it works. Each time the electrode was fire up it was a higher pitch. As I was watching, all 16 electrodes were fired up and I was getting excited as I was hearing all the different pitches as each was turned on. It was totally different from the first time because all I could hear was beep beep.
She told me she would be turning the processor on and after she turned it on, she ask me "Can you hear me or understand what I'm saying? I said yes and I broke down in tears. I was so excited because I could understand her and John without the left chochlear implant on and not looking at her all the time.
She had me put on the left processor and she asked me how things sounded with it. Things sounded normal and she was getting excited because she said that a good thing and that I would do really well on that right ear. She had me on three programs and of them are hires P 120 and one is not.
She asked me to try each one for a couple of days to see how they sound and to let her know and we can go from there. She said that I will see you in one week, but the appointment had been change to February 4 at 10 a.m.
Sunday, January 17, 2010
Two Week Follow Up
On January 14,2010,I went for my two week follow up after surgery for the Chochlear Implant. The Nurse took me and the boys back to a room where she started taking 16 staples out of my ear and the boys stood behide me and watch her take them out.
Dr Schwaber came in and smiled and said you've got company today as he watch the nurse finish taking out the staples out. He said that there were four staples that were not straight. He asked me how things were going and I told him that John was little worried about the back of my head. I told him that a few days ago we bought in our two big dogs that we keep outside because it was cold. The big female dog was attacking digger, our small dog, in the kitchen and I was right in the middle of it. John was trying to get to me and he was trying to move a chair to get to me and it hit me in the back of the head. He checked my head and said that everything looked okay and the implants look good. He told me that he thought that I was going to do really well with the right ear and that I was doing really well with the left ear,and that it was a go-ahead for activation day,January 21, 2010
Saturday, January 9, 2010
The Second Surgery
Jan 10, 2010 11 days after surgery
Fouth day after surgery
Three days after surgery
Me with Jeremy hugging me at Pizza Hut after surgery
My Loving husband John With me after surgery
My sons James and Jeremy With me after surgery
Me after surgeryOn Wednesday, December 30, 2009, I had my second cochlear implant surgery. We arrived at the hospital at 5:40 AM. The staff gave us a card with the number on it for the privacy of patients so they feel more comfortable when being called to surgery. When the nurse called me back she was talking to soft that John could not hear her calling our number and had to ask her if she was calling our number. she also called a another lady to come back at the same time.
The nurse was new and had put me in the wrong bed and the other lady in the wrong bed. The new nurse came back in and said you need to let me get ready to put a catheter in you and John said what the *******? She said ," Your wife is having a kidney transplant."John said to her , "You have the wrong woman! My wife is having a chochlear implant put in!!!!" Then someone else came in and told us they were sorry and that she was new girl here.
Later they came to get me and I told John and the boys bye and that I love them very much and they look at me like it is the last they would ever see me and I told them I will be back. They wheeled me to pre-op waiting area where they set me up with an IV and preparations for surgery.
We had to wait on Dr.Schwaber to get there and while we were waiting on him the CI team stay with me. I was happy to know that the CI team was with me and there names are Somorrow,Dana,Judy,Kimberley, This was the same CI team I had the first time. Dr.Schwaber was running 15 minutes late. He finally showed up and they marked my head and they gave me something to relax me.
John told me the surgery started at 7:45 a.m. The nurse said they would bring the CI processor from my first CI out to him but the nurse never did bring it to him and he was getting worried that something was wrong. The doctor called him on his cell and told him that everything was fine and all 16 electrodes fired up successfully in the OR and that I was doing great. The head nurse had the CI processor to put back on me so I could hear when I woke up in recovery. I got into recovery at 10 a.m. and back with John and the boys at 11:30 and was released at 12 noon. John had a blanket and the neck pillow in the car.
On the way home we stopped at Walmart to get my medications and the boys said that they were hungry and that they would like to have Pizza Hut. I told John that I was up to having Pizza to so we stopped at the Pizza Hut on the way home and that was just down the road from Walmart. We ate Pizza and talked for a little bit and John had ordered more pizza to take home for the boys to eat. We were home at 5 p.m. I had to sleep with my head elevated for about a week and the pressure bandage was off the next day. I was not allow to drive for two weeks I go back to Dr,Schwaber on January 14th to have a post-op check and to take the staples out. One week later on January 21 will be activation day.
Friday, January 8, 2010
My Approveal And Pre-Op
December23,2009, John called the insurance company to see if I got their approval for surgery for the second implant. The insurance companies said yes, it is a medical necessity to have a second implant and that they would pay for it to be done. They also told me to have my pre-op done on December 28, 2009. John, the boys and I went to St. Thomas Hospital in Nashville, Tennessee to get my pre-op done on December 28,2009 Wednesday's surgery.
When they called me back to get all the paperwork done, while the nurse was doing this, she kept looking at me and said "I remember you and when you were here the last. It was 11 months ago to get the chochlear implant for your left ear." I said yes and she said "Isn't it funny that I got all your paperwork" The first time was months ago. John and I and the lady laughed so hard about it was really funny to have the same pre-op registration nurse.
She asked me if I was going for the second implant and I answered yes. She said "You are really doing well on your first one" and smiled as we were going to another station to get other things done. She looked at the boys and said your mom and I are buddies and told John to take good care of me until Wednesday as they would take over at the time of the surgery and then he can have me back. So everything is set for Wendnesday December 30,2009
When they called me back to get all the paperwork done, while the nurse was doing this, she kept looking at me and said "I remember you and when you were here the last. It was 11 months ago to get the chochlear implant for your left ear." I said yes and she said "Isn't it funny that I got all your paperwork" The first time was months ago. John and I and the lady laughed so hard about it was really funny to have the same pre-op registration nurse.
She asked me if I was going for the second implant and I answered yes. She said "You are really doing well on your first one" and smiled as we were going to another station to get other things done. She looked at the boys and said your mom and I are buddies and told John to take good care of me until Wednesday as they would take over at the time of the surgery and then he can have me back. So everything is set for Wendnesday December 30,2009
My First Christmas With My CI
On Christmas day, December 25, 2009 I celebrate Christmas the first time with my CI, it was amazing. I could hear my grandchildren laugh and play. They squealed in delight over what they got from Santa, and from granddaddy, and granny Nee Nee. Also to hear the boys and their excitement on what they found under the tree that santa brought them. The boy screamed in delight when they saw their bikes, and their gifts and saw their BB rifles, bows and arrows,Wii games, and movies. It was wonderful, able to hear the happiness that everyone was having and to be able to hear the music and the round table and hear what everyone was saying and understanding. It was a amazing. I cannot remember hearing the children laughing and playing with such excitement. WOW..... these are the memories that I will remember for the rest of my life and cherish-these are special times that I can hear with my CI. I was so blessed this Christmas, and I just can't say it in words how grateful and blessed I feel to have family and friends such as you. Thank you Lord for our wonderful blessed year of 2009. Thanks for support from family and my friends from hearing journey.com, and from Facebook
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